Recorded: EIP 2015 ● Language: English ● Duration: 25 minutes Topic: Pediatric Rare Diseases


Speaker: CHRIS VERITY, Consultant Paediatric Neurologist, Addenbrooke’s Hospital, BPSU, United Kingdom

  Learning Objectives: At the end of the session participants will: (1) learn how this study provides a model for the systematic epidemiological surveillance of a complex mixture of diseases in childhood provided by this surveillance; (2) understand the need to obtain patient identifiable data when there is significant concern about public health; and (3) understand and learn from the unique data about the epidemiology of pediatric neurodegenerative disease provided by this study.