[EIP 2015] Progressive Intellectual and Neurological Deterioration – Identifying the Syndromes

Recorded: EIP 2015 ● Language: English ● Duration: 25 minutes Topic: Pediatric Rare Diseases

     
 

Speaker: CHRIS VERITY, Consultant Paediatric Neurologist, Addenbrooke’s Hospital, BPSU, United Kingdom

 
     
  Learning Objectives: At the end of the session participants will: (1) learn how this study provides a model for the systematic epidemiological surveillance of a complex mixture of diseases in childhood provided by this surveillance; (2) understand the need to obtain patient identifiable data when there is significant concern about public health; and (3) understand and learn from the unique data about the epidemiology of pediatric neurodegenerative disease provided by this study.  
         

 




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