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ONLINE COURSE


CHALLENGES IN DISEASE MANAGEMENT OF MPS AND ALPHA–MANNOSIDOSIS

An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics

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MODULE 1
Introducing MPS and Alpha-mannosidosis: Challenges in Diagnosis and Disease Management

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Presenter: CHRISTINA LAMPE, Director of the Centre for Rare Diseases of the Department of Child Neurology, Epileptology and Social Medicine, Center for Paediatric and Adolescent Medicine, University Hospital of Gießen, Germany.

 ➡️ Language: English  ➡️ Duration: 40 min presentation followed by 20 min Q&A

WATCH THE VIDEO OF THE RECORDED MODULE 1 ▷


MODULE 2
MPS and Alpha-mannosidosis: Challenges in Disease Management - Otorhinolaryngology and Anaesthesiology

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Presenter: MEHMET UMUT AKYOL, Professor of Otorhinolaryngology, Hacettepe University, Turkey

Presenter: MATTHIAS K. SCHAEFER, Clinic for Anesthesia, Intensive Care, Emergency Medicine and Pain Therapy, Acura-Kliniken, Albstadt, Germany. Honorary Clinical Lecturer at the University Medical School of Mainz, Mainz, Germany and the University of Jena, Germany.

 ➡️ Language: English  ➡️ Duration: 30 min presentations followed by 10 min Q&A

WATCH THE VIDEO OF THE RECORDED MODULE 2 ▷


MODULE 3
MPS and Alpha–mannosidosis: Challenges in Disease Management - Orthopaedics

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Presenter: ANDREA BORGO, Orthopaedic Surgeon and Assistant Professor at the Orthopaedic Clinic, University General Hospital of Padova, Italy

 ➡️ Language: English  ➡️ Duration: 30 min presentation followed by 10 min Q&A

WATCH THE VIDEO OF THE RECORDED MODULE 3 ▷


MODULE 4
MPS and Alpha–mannosidosis: Challenges in Disease Management - Neurology

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Presenter: MAURIZIO SCARPA, Director of the Regional Coordinating Center for Rare Diseases Udine, University Hospital Udine, Italy

 ➡️ Language: English  ➡️ Duration: 30 min presentation followed by 10 min Q&A

WATCH THE VIDEO OF THE RECORDED MODULE 4 ▷


MODULE 5
MPS and Alpha–mannosidosis: Challenges in Disease Management - Cardiology 

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Presenter: ELIZABETH BRAUNLIN, Professor, Department of Pediatrics, Division of Pediatric Cardiology, Team Member of Mucopolysaccharidosis (MPS) Center, University of Minnesota, USA

 ➡️ Language: English  ➡️ Duration: 20 min presentation followed by 10 min Q&A

WATCH THE VIDEO OF THE RECORDED MODULE 5 ▷

 

 


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    12TH EXCELLENCE IN PEDIATRICS CONFERENCE, 3-5 DECEMBER 2020, AMSTERDAM

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    3-5 DECEMBER 2020

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