MPS-C2M2: A Personal Perspective - Understanding the MPS Patient's Needs
| ORGANISED AND VIDEO IS AVAILABLE |
➡️ Recorded: Wednesday 27 May 2020
➡️ Language: English
➡️ Duration: 40 min
▷ Presenter: MICHAELA WEIGL, Austrian MPS Society, Austria
▷ Presenter: OSKAR AHLBERG, Swedish MPS Association, Sweden
MPS-C2M3: Role of Paediatricians. Managing the MPS Patient with Everyday Health Issues
| ORGANISED AND VIDEO IS AVAILABLE |
➡️ Recorded: Wednesday 3 June 2020
➡️ Language: English
➡️ Duration: 40 min
▷ Presenter: SIMON JONES, Royal Manchester Children's Hospital, United Kingdom
▷ Presenter: JANE ROBERTS, Royal Manchester Children's Hospital, United Kingdom
MPS-C2M4: Psychological Care for the Child and Family with MPS Disorder
| ORGANISED AND VIDEO IS AVAILABLE |
➡️ Recorded: Wednesday 10 June 2020
➡️ Language: English
➡️ Duration: 30 min
▷ Presenter: STEWART RUST, Royal Manchester Children's Hospital, United Kingdom
MPS-C2M5: Advances in Treatments Available for MPS
| ORGANISED AND VIDEO IS AVAILABLE |
➡️ Recorded: Wednesday 17 June 2020
➡️ Language: English
➡️ Duration: 30 min
▷ Presenter: Prof. FLORIAN LAGLER, Paracelsus Medical University in Salzburg, Austria
MPS-C2M6: The MPS Patient's Transition from Childhood to Adulthood - Practical Advice for Paediatricians
| ORGANISED AND VIDEO IS AVAILABLE |
➡️ Recorded: Wednesday 24 June 2020
➡️ Language: English
➡️ Duration: 30 min
▷ Presenter: CHRISTINA LAMPE, University Hospital of Gießen, Germany
COURSE 3: Challenges in Diagnosis and Management of MPS and Alpha-mannosidosis
MPS-C1M1: Introducing MPS and alpha-mannosidosis: Challenges in Diagnosis and Disease Management
Posted by Excellence in Pediatrics · December 05, 2019 7:38 AM
MPS-C1M2: MPS and Alpha-mannosidosis: Challenges in Disease Management – Otorhinolaryngology and Anaesthesiology
Posted by Excellence in Pediatrics · December 04, 2019 10:20 AM
MPS-C1M3: MPS and Alpha–mannosidosis: Challenges in Disease Management – Orthopaedics
Posted by Excellence in Pediatrics · December 03, 2019 10:37 AM
MPS-C1M1: Introducing MPS and alpha-mannosidosis: Challenges in Diagnosis and Disease Management
| RECORDED WEBINAR |
➡️ Language: English
➡️ Duration: 70 min
➡️ Presenter: CHRISTINA LAMPE, University Hospital of Gießen, Germany
MPS-C1M2: MPS and Alpha-mannosidosis: Challenges in Disease Management – Otorhinolaryngology and Anaesthesiology
| RECORDED WEBINAR |
➡️ Language: English
➡️ Duration: 37 min
➡️ Presenter: Prof. MEHMET UMUT AKYOL, Hacettepe University, Turkey
➡️ Presenter: Dr MATTHIAS SCHAFER, Acura-Kliniken, Albstadt, Germany
MPS-C1M3: MPS and Alpha–mannosidosis: Challenges in Disease Management – Orthopaedics
| RECORDED WEBINAR |
➡️ Language: English
➡️ Duration: 40 min
➡️ Presenter: Ass. Prof. ANDREA BORGO, University General Hospital of Padua, Italy
MPS-C1M4: MPS and Alpha–mannosidosis: Challenges in Disease Management – Neurology
| RECORDED WEBINAR |
➡️ Language: English
➡️ Duration: 46 min
➡️ Presenter: MAURIZIO SCARPA, University Hospital Udine, Italy