Language: English 

Duration: 40 minutes

Topic: MPS

Speakers: Dr CHRISTINA LAMPE, Director of the Centre for Rare Diseases of the Department of Child Neurology, Epileptology and Social Medicine, Center for Paediatric and Adolescent Medicine, University Hospital of Gießen, Germany ● Prof. ADRIANA MONTANO, Doisy Research Center, Department of Pediatrics and Department of Biochemistry and Molecular Biology School of Medicine, Saint Louis University, USA


Learning Objectives

  • Using Case Studies to better understand how the multidisciplinary team approach to managing MPS patients is so vital

  • Examining the role of the general paediatrician in coordinating local care and allied healthcare professionals through a typical case study

  • Reviewing a case study demonstrating the importance of communication between centres, professionals and families in managing MPS patients


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