Cystinosis - Early Diagnosis and Patient Support

Speaker: Valerie Hotz

Duration: 0:23:18
Learning objectives: At the end of the video, viewers will: (1) understand the symptoms of Nephropathic Cystinosis and their similarity to Diabetes, and the resultant risk of misdiagnosis; (2) understand the importance of collaboration among healthcare professionals, families/patients to care for patient including referral to established Cystinosis patient support group to improve long-term outcomes; and (3) learn how to promote all stakeholders remaining open to hearing one another to improve the care for the patient.

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