MPS EUROPE NEW WEBINAR SERIES


 

NEW FREE-TO-VIEW LIVE WEBINARS

The Multidisciplinary Team Approach to MPS Patient Care, Treatment and Support 

Enhancing the Quality of Life of Persons Affected by Mucopolysaccharide Across Europe

By taking a multidisciplinary healthcare team approach we can better understand how to work with colleagues to support patients with MPS with their everyday healthcare needs, as well as by having a better understanding of the latest treatment options. The Education Program is an MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics.
MODULE 1 
COVID-19 - Supporting MPS Patients in Times of Epidemic - Practical Information for Pediatricians
Monday 18 May 2020     
14:00 Central European Summer Time  (Duration: 60 min)
  • CHRISTINA LAMPE, University of Gießen, Germany  
  • HEATHER LAU, New York University, USA  
  • DAFNE HOROVITZInstituto Nacional de Saude da Mulher, da Criança e do Adolescente Fernandes Figueira, Brazil
  • MAURIZIO SCARPA, Udine University Hospital, Italy
Register for MODULE 1 ➔
MODULE 2
A Personal Perspective  Understanding the MPS Patient's Needs
Wednesday 27 May 2020     
13:00 Central European Summer Time  
Duration: 40 min  
  • MICHAELA WEIGL, Austrian MPS Society, Austria  
  • OSKAR AHLBERG, Swedish MPS Association, Sweden  
Register for MODULE 2 ➔
MODULE 4
Psychological Care for the Child and Family with MPS Disorder
Wednesday 10 June 2020     
13:00 Central European Summer Time  
Duration: 30 min  
  • STEWART RUST, Royal Manchester Children's Hospital, UK
Register for MODULE 4 ➔
MODULE 6
The MPS Patient's Transition from Childhood to Adulthood - Practical Advice for Paediatricians
Wednesday 24 June 2020     
13:00 Central European Summer Time  
Duration: 30 min  
  • CHRISTINA LAMPE, University Hospital of Gießen, Germany  
Register for MODULE 6 ➔
MODULE 3
Role of Paediatricians. Managing the MPS Patient with Everyday Health Issues
Wednesday 3 June 2020     
13:00 Central European Summer Time  
Duration: 30 min  
  • SIMON JONES, Royal Manchester Children's Hospital, UK  
  • JANE ROBERTS, Royal Manchester Children's Hospital, UK
Register for MODULE 3 ➔
MODULE 5
Advances in Treatments Available for MPS
 
Wednesday 17 June 2020     
13:00 Central European Summer Time  
Duration: 30 min  
  • FLORIAN LAGLER, Paracelsus Medical University, Austria  
Register for MODULE 5 ➔

You can also watch the videos of the recorded webinars from the previous series 


Challenges in Diagnosis and Management of MPS and Alpha-mannosidosis

(5 webinars)


Read more...
 
An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics,
with the support of 
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