LIVE WEBINAR SERIES: Enhancing the Quality of Life of Persons Affected by Mucopolysaccharide (MPS) Across Europe


The Multidisciplinary Team (MDT) Approach to MPS Patient Care, Treatment and Support

The premise being that by looking at the multidisciplinary team healthcare team approach healthcare professionals can better understand how to support patients with MPS in the everyday healthcare needs. In addition by providing a better understanding of the latest treatment options we can help HCPs better support patients.

An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics

All webinars are free to attend, and a certificate of attendance will be provided by the Excellence in Pediatrics Institute for those attending a session. As soon as you register for a webinar you will also be registered for all the webinars of the series. Further information and a link to register in each of the webinars below.

MPS-C2M1: COVID-19 - Supporting MPS Patients in Times of Epidemic - Practical Information for Pediatricians

ORGANISED AND VIDEO IS AVAILABLE

➡️ Recorded: Monday 18 May 2020   
➡️ Language: English  
➡️ Duration: 60 min  
▷  
Presenter: CHRISTINA LAMPE, University Hospital of Gießen, Germany  
▷  Presenter: HEATHER LAU, New York University, USA  
▷  Presenter: DAFNE HOROVITZ, Instituto Nacional de Saude da Mulher, da Criança e do Adolescente Fernandes Figueira, Brazil  
▷  Presenter: MAURIZIO SCARPA, Udine University Hospital, Italy

View the Learning Objectives and Register to Attend the Live webinar...

MPS-C2M2: A Personal Perspective - Understanding the MPS Patient's Needs

ORGANISED AND VIDEO IS AVAILABLE

➡️ Recorded: Wednesday 27 May 2020  
➡️ Language: English  
➡️ Duration: 40 min  
▷  
Presenter: MICHAELA WEIGL, Austrian MPS Society, Austria  
▷  Presenter: OSKAR AHLBERG, Swedish MPS Association, Sweden  

View the Learning Objectives and Register to Attend the Live webinar...

MPS-C2M3: Role of Paediatricians. Managing the MPS Patient with Everyday Health Issues

ORGANISED AND VIDEO IS AVAILABLE

➡️ Recorded: Wednesday 3 June 2020  
➡️ Language: English  
➡️ Duration: 40 min  
▷  
Presenter: SIMON JONES, Royal Manchester Children's Hospital, United Kingdom  
▷  Presenter: JANE ROBERTS, Royal Manchester Children's Hospital, United Kingdom  

View the Learning Objectives and Register to Attend the Live webinar...

MPS-C2M4: Psychological Care for the Child and Family with MPS Disorder

ORGANISED AND VIDEO IS AVAILABLE

➡️ Recorded: Wednesday 10 June 2020  
➡️ Language: English  
➡️ Duration: 30 min  
▷  
Presenter: STEWART RUST, Royal Manchester Children's Hospital, United Kingdom  

View the Learning Objectives and Register to Attend the Live webinar...

MPS-C2M5: Advances in Treatments Available for MPS

ORGANISED AND VIDEO IS AVAILABLE

➡️ Recorded: Wednesday 17 June 2020  
➡️ Language: English  
➡️ Duration: 30 min  
▷  
Presenter: Prof. FLORIAN LAGLER, Paracelsus Medical University in Salzburg, Austria  

View the Learning Objectives and Register to Attend the Live webinar...

MPS-C2M6: The MPS Patient's Transition from Childhood to Adulthood - Practical Advice for Paediatricians

ORGANISED AND VIDEO IS AVAILABLE

➡️ Recorded: Wednesday 24 June 2020  
➡️ Language: English  
➡️ Duration: 30 min  
▷  
Presenter: CHRISTINA LAMPE, University Hospital of Gießen, Germany  

View the Learning Objectives and Register to Attend the Live webinar...


An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics,  with the support of 

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