COURSE 3: Challenges in Diagnosis and Management of MPS and Alpha-mannosidosis


An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics

The free-to-attend online course has been designed to help specialists and general paediatricians to reduce delay in the referral and diagnosis of patients with suspected MPS and alpha-mannosidosis, as well as improving the quality of patient’s lives who have already been diagnosed.

On-time diagnosis is crucial for access to treatment and clinical trials, disease management and to access the proper care services at the earliest of the disease possible. This subsequently leads to a better quality of life for the patients, and as well for their families and caregivers.

The course is free to attend, and a certificate of attendance will be provided by the Excellence in Pediatrics Institute for those who attend each module of the course. As soon as you register for the selected module you will also be registered for all the modules of the course. Further information on all upcoming modules as part of course, below:


MPS-C1M1: Introducing MPS and alpha-mannosidosis: Challenges in Diagnosis and Disease Management

RECORDED WEBINAR

➡️ Language: English
➡️ Duration: 70 min
➡️
Presenter: CHRISTINA LAMPE, University Hospital of Gießen, Germany

View the Learning Objectives and Register to Access the recorded webinar...

MPS-C1M2: MPS and Alpha-mannosidosis: Challenges in Disease Management – Otorhinolaryngology and Anaesthesiology

RECORDED WEBINAR

➡️ Language: English
➡️ Duration: 37 min
➡️ Presenter: Prof. MEHMET UMUT AKYOL, Hacettepe University, Turkey
➡️ Presenter: Dr MATTHIAS SCHAFER, Acura-Kliniken, Albstadt, Germany

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MPS-C1M3: MPS and Alpha–mannosidosis: Challenges in Disease Management – Orthopaedics

RECORDED WEBINAR

➡️ Language: English
➡️ Duration: 40 min
➡️
Presenter: Ass. Prof. ANDREA BORGO, University General Hospital of Padua, Italy

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MPS-C1M4: MPS and Alpha–mannosidosis: Challenges in Disease Management – Neurology

RECORDED WEBINAR

➡️ Language: English
➡️ Duration: 46 min
➡️
Presenter: MAURIZIO SCARPA, University Hospital Udine, Italy

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MPS-C1M5: MPS and Alpha–mannosidosis: Challenges in Disease Management – Cardiology

RECORDED WEBINAR

➡️ Language: English
➡️ Duration: 31 min
➡️
Presenter: Prof. ELIZABETH BRAUNLIN, University of Minnesota, USA

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An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics,  with the support of 

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