Language: English ● Duration: 40 minutes Topic: MPS

Speakers: Dr CHRISTINA LAMPE, Director of the Centre for Rare Diseases of the Department of Child Neurology, Epileptology and Social Medicine, Center for Paediatric and Adolescent Medicine, University Hospital of Gießen, Germany ● Prof. ADRIANA MONTANO, Doisy Research Center, Department of Pediatrics and Department of Biochemistry and Molecular Biology School of Medicine, Saint Louis University, USA

Learning Objectives: (1) Using Case Studies to better understand how the multidisciplinary team approach to managing MPS patients is so vital (2) Examining the role of the general paediatrician in coordinating local care and allied healthcare professionals through a typical case study (3) Reviewing a case study demonstrating the importance of communication between centres, professionals and families in managing MPS patients