Language: English ● Duration: 40 minutes ● Topic: MPS
Speakers: SIMON JONES, Royal Manchester Children's Hospital, United Kingdom ● JANE ROBERTS, Royal Manchester Children's Hospital, United Kingdom
Learning Objectives: (1) Understanding the importance of the multidisciplinary team approach to managing MPS patients (2) Discussing the role of the local or general paediatrician in coordinating local care, allied healthcare professionals and acute admissions (3) Underlining the importance of communication between centres, professionals and families in managing MPS patients