(MPS-C4-M2) A Personal Perspective - Understanding the MPS Patient's Needs

Language: English ● Duration: 40 minutes Topic: MPS

     
 

Speaker: MICHAELA WEIGL, Austrian MPS Society, Austria ● OSKAR AHLBERG, Swedish MPS Association, Sweden

 
     
  Learning Objectives: (1) Understanding a child’s MPS diagnose journey from the family's perspective (2) Gaining an insight into everyday life, family, siblings, daycare, kindergarten and school (3) What all paediatricians need to pay attention to - useful tips and advice from parents to HCPs (4) What parents want paediatricians to ask them but they never have  
         

 




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