MPS-C2M4: Psychological Care for the Child and Family with MPS Disorder


➡️ Recorded: Wednesday 10 June 2020  
➡️ Language: English  
➡️ Duration: 30 min  
Presenter: STEWART RUST, Royal Manchester Children's Hospital, United Kingdom  

Learning Objectives: (1) Increase awareness of the psychological challenge to the families and young people coping with a chronic condition (2) Be familiar with the adjustment cycle in grief/adaptation (3) Provide some reminders about how to support and cope with distress in children and families






  • Stewart R. Rust, B.Sc., D.Clin.Psych, PGDip, is a Consultant Paediatric Neuropsychologist working in Neurology and Metabolic conditions at the Department of Paediatric Psychosocial Services at Royal Manchester Children’s Hospital, United Kingdom.  Dr Rust received his doctorate in clinical psychology from the University of Manchester and his postgraduate diploma in paediatric clinical neuropsychology from Nottingham University, United Kingdom. He is a chartered psychologist and an Associate Fellow of the British Psychological Society as well as a Health Professions Council registrant. Dr Rust has worked for the National Health Service for 24 years, with experience in metabolic conditions and the challenges they present for children and families. His clinical and research interests include neuropsychological assessment as well as wider psychosocial factors affecting children, young people, and families coping with metabolic conditions. Dr Rust is a regular research contributor to the Willink Metabolic Unit in Manchester and is a co-author of From Timid to Tiger: A Treatment Manual for Parenting the Anxious Child.

Important Note: The information provided on this session is intended and designed for use by healthcare professionals with an interest in metabolic diseases and MPS. All session viewers are required to register for the selected webinar before accessing the content. Content and views shared are solely those of the speaker.

The course is an MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics with the support of Abeona, Biomarin, Orchard Therapeutics, Regenxbio, Sanofi Genzyme, Takeda, and Ultragenyx. All modules of the course are independently organised by EIP in terms of content, topics and speakers appointed. 




get updates