Spot the Early SignsProgram

Recorded Courses


The Multidisciplinary Team (MDT) Approach to MPS Patient Care, Treatment and Support

 

Enhancing the Quality of Life of Persons Affected by Mucopolysaccharide (MPS) Across Europe

The premise is that by looking at the multidisciplinary team healthcare team approach healthcare professionals can better understand how to support patients with MPS in everyday healthcare needs. In addition by providing a better understanding of the latest treatment options, we can help HCPs better support patients.

An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics. All webinars are free to attend, and a certificate of attendance will be provided by the Excellence in Pediatrics Institute for those attending a module. 

 

 
(MPS-C4-M1) Supporting MPS Patients in Times of COVID-19 Epidemic - Practical Information for Pediatricians
  CHRISTINA LAMPE, Germany ● HEATHER LAU, USA, ● DAFNE HOROVITZ, Brazil, ● MAURIZIO SCARPA, Italy
             
 
(MPS-C4-M2) A Personal Perspective - Understanding the MPS Patient's Needs
  MICHAELA WEIGL, Austrian MPS Society, Austria ● OSKAR AHLBERG, Swedish MPS Association, Sweden
             
 
(MPS-C4-M3) Role of Paediatricians. Managing the MPS Patient with Everyday Health Issues
  SIMON JONES, Royal Manchester Children's Hospital, United Kingdom ● JANE ROBERTS, Royal Manchester Children's Hospital, United Kingdom
             
 
(MPS-C4-M4) Psychological Care for the Child and Family with MPS Disorder
  STEWART RUST, Royal Manchester Children's Hospital, United Kingdom
             
 
(MPS-C4-M5) Advances in Treatments Available for MPS
  Prof. FLORIAN LAGLER, Paracelsus Medical University in Salzburg, Austria
             
 
(MPS-C4-M6) The MPS Patient's Transition from Childhood to Adulthood - Practical Advice for Paediatricians
  CHRISTINA LAMPE, University Hospital of Gießen, Germany
             
             
 
An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics
 
   
     
 
with the support of 
 
     
   
             

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