Spot the Early SignsProgram

Recorded Courses


Course 3: Challenges in Diagnosis and Management of MPS and Alpha-mannosidosis (Otorhinolaryngology, Anaesthesiology, Orthopaedics, Neurology, Cardiology)

 

The free-to-attend online course has been designed to help specialists and general paediatricians to reduce delay in the referral and diagnosis of patients with suspected MPS and alpha-mannosidosis, as well as improving the quality of patient’s lives who have already been diagnosed. On-time diagnosis is crucial for access to treatment and clinical trials, disease management and to access the proper care services at the earliest of the disease possible. This subsequently leads to a better quality of life for the patients, and as well for their families and caregivers.

An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics. The course is free to attend, and a certificate of attendance will be provided by the Excellence in Pediatrics Institute for those who attend each a module. 

 

 
(MPS-C3-M1) Introducing MPS and alpha-mannosidosis: Challenges in Diagnosis and Disease Management
 

CHRISTINA LAMPE, University Hospital of Gießen, Germany

             
 
(MPS-C3-M2) MPS and Alpha-mannosidosis: Challenges in Disease Management – Otorhinolaryngology and Anaesthesiology
 

Prof. MEHMET UMUT AKYOL, Hacettepe University, Turkey ● Dr MATTHIAS SCHAFER, Acura-Kliniken, Albstadt, Germany

             
 
(MPS-C3-M3) MPS and Alpha–mannosidosis: Challenges in Disease Management – Orthopaedics
 

Ass. Prof. ANDREA BORGO, University General Hospital of Padua, Italy

             
 
(MPS-C3-M4) MPS and Alpha–mannosidosis: Challenges in Disease Management – Neurology
 

MAURIZIO SCARPA, University Hospital Udine, Italy

             
 
(MPS-C3-M5) MPS and Alpha–mannosidosis: Challenges in Disease Management – Cardiology
 

Prof. ELIZABETH BRAUNLIN, University of Minnesota, USA

             
             
 
An MPS Europe project in partnership with MetabERN and the Excellence in Pediatrics
 
   
     
 
with the support of 
 
     
   
             
             

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