The Spot The Early Signs Educational Program has now produced 40 webinars delivered by international experts with more than 6,500 viewings, 20+ newsletters, as well as allied awareness campaigns, that have been sent to 45,000 child healthcare professionals globally. All our actions are aiming to fight under-diagnosed or late-diagnosed conditions for which treatments are available and where early detection and early treatment could make a significant difference in the condition's development, the quality of life and the survival of patients. 

We have established a solid base and following and having focused on spotting the signs of Mucopolysaccharidosis (MPS) and Metachromatic Leukodystrophy (MLD), so far, we now want your input on where we should focus efforts and resources next? Please use the feedback form here and help us shape the next steps.