Recorded: EIP 2015 ● Language: English ● Duration: 23 minutes Topic: Pediatric Rare Diseases


Speaker: JAYNE SPINK, CEO, Tuberous Sclerosis Association, United Kingdom

  Learning Objectives: At the end of the session participants will: (1) understand the wide variation in how children are affected by tuberous sclerosis, and how this may change over time; (2) gain an appreciation of the possible wider impacts of TSC on the family; and (3) learn what support might be helpful to families and the ways in which support needs can be met.