[EIP 2015] Patient-Centric Approaches, Treatment of Children with Suspected Tuberous Sclerosis

Recorded: EIP 2015 ● Language: English ● Duration: 23 minutes Topic: Pediatric Rare Diseases

     
 

Speaker: JAYNE SPINK, CEO, Tuberous Sclerosis Association, United Kingdom

 
     
  Learning Objectives: At the end of the session participants will: (1) understand the wide variation in how children are affected by tuberous sclerosis, and how this may change over time; (2) gain an appreciation of the possible wider impacts of TSC on the family; and (3) learn what support might be helpful to families and the ways in which support needs can be met.  
         

 




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